Sightless beauty

She was five years old with strawberry blonde bangs. I gave her a ukulele that she held face-up in her lap and strummed, steady as a heartbeat. I played gentle guitar chords underneath her sounds, listening for the song she was making, and she sang for twenty minutes straight. She sang no, no no no no. She sang yes. She sang about her nana and her dad. She sang about throwing up, diarrhea and IV fluids. She sang with a smile, pleasantly lost. Her mother sat next to her, also smiling, so proud and echoing her daughter’s small clear voice.

She had eyes that didn’t see. Beautiful blue eyes that swung aimlessly when someone talked to her. I imagined her world as we played, soaked in the soundscape she was painting around us. Her world full of invisible colors. For twenty minutes, I was swept into a new kind of beauty with her.

My heart is staining colors I will never see.

Wow

The end of a long day I wasn’t sure I would get through. Taking the elevator upstairs, head leaning against the wall. A mother and her two kids got in, a small girl and a smaller boy. From the moment they got in and pushed the button, the boy said, “Wowwww.” “Wowwww” as we gently lurched and moved upward. “Wowwww” when it stopped. “Wowwwww. Wowwww. Wowwwww.” When it stopped at their floor, the mother (with her hands full of bags) had to stick out her leg and nudge him off the elevator, smiling back at me like, what can you do. Even as they were walking away, I could hear him still going, “wowww. Wowwww. Wowwwww.”

Wow.

Word.

Mission iPod

My job is so strange and wonderful. The other day, our boss called us and said a social worker was requesting an iPod for a preteen in the PICU at the other hospital. His iPod wasn’t holding a charge and he was going through a lot of pain, and the social worker was hoping to get him some music. Our iPod checkout is still getting back up and running, so this was the first request of its kind, but we stopped service and drove back to the office to get an iPod and lock, and then went off to the PICU at the other hospital.

While the whole hospital setting has an energy unlike anywhere else, the PICU (pediatric intensive care unit) is a different world within it. A lot of the kids are not responsive – some are on intubation, or hooked up to more machines than I could properly name or explain. Many of them are sedated, and some are in a lot of pain. This is how we found our 12-year-old boy, curled on his side crying, with his mother standing nearby in a grim, straight line. Doctors in yellow gowns and surgical masks were flitting from monitor to monitor in a dance whose direction and purpose I couldn’t fathom.

It is a romantic notion, rushing to bedsides delivering music, but the logistics are frequently confusing and uncomfortable. The doctor closest to me saw me gowning up and informed me they were about to do a procedure – I explained that we were here to deliver an iPod and would just be a minute, and he said “oh, ok.” (It is more than a little stressful feeling in the way of people who are delivering actual medicine when you are toting a ukulele or, in this case, a tiny red iPod locked up to a giant piece of plastic with a purple heart on it.) I entered the room and extended my offerings to the mother, who only spoke Spanish, with a handful of phrases I managed to piece together. She took them and nodded, gracious despite the absurdity of the situation. I smiled, and got the hell out.

Again, throwing best efforts behind a plan that we may not see come to fruition. I hope it was a comfort to him later, that the procedure went alright, that there was a moment afterwards where he could lie back and scroll to a band he liked and find some peace in that. But most of the time we don’t find out those things. Our job is to give what we have in the moment. Our job is to show up.

To Rest

The video I’m about to post is dedicated to a young life we lost last week. He always said yes to music, even on the days where he couldn’t pick up a shaker, when the most he could give us was a tiny smile. He was 3 years old.

I so loved singing to you, sweet one. Keep close to your mother, and rest your strong spirit.